Disability Servitude traces the history and legacy of institutional peonage. For over a century, public and private institutions across the country relied on the unpaid, forced labor of their residents and patients in order to operate. This book describes the work they performed, in some cases for ten or more hours a day, seven days a week, and the lawsuits they brought in an effort to get paid. The impact of those lawsuits included accelerated de-institutionalization, but they fell short of obtaining equal and fair compensation for their plaintiffs. Instead, thousands of resident and patient-workers were replaced by non-disabled employees. Disability Servitude includes a detailed history of longstanding problems with the oversight of the sub-minimum wage provision in the Fair Labor Standards Act oversight. Beckwith shows how that history has resulted in the continued segregation and exploitation of over 400,000 workers with disabilities in sheltered workshops that legally pay far less than minimum wage.
This book is about the employment of people with disabilities in the United States and the important role of employer practices. Nearly one in five people report some form of disability, and they are only half as likely to be employed as those without disabilities. With the aging workforce and returning military veterans both contributing to increasing number of disabilities in the workplace, there is an urgent need for better ways to address continuing employment disparities for people with disabilities. Examining employer behaviors is critical to changing this trend. It is essential to understand the factors that motivate employers to engage this workforce and which specific practices are most effective. Disability and Employer Practices features research-based documentation of workplace policies and practices that result in the successful recruitment, retention, advancement, and inclusion of individuals with disabilities.The Cornell team whose work is featured in this book drew from multiple disciplines, data sources, and methodologies to learn where employment disparities for people with disabilities occur and to identify workplace policies and practices that might remediate them. The contributors include individuals with expertise in the fields of business, economics, education, environmental design and analysis, human resources, management, industrial/organizational psychology, public health, rehabilitation psychology, research methods, survey design, educational measurement, statistics, and vocational rehabilitation counseling.Contributors Linda Barrington, Institute for Compensation Studies, ILR School, Cornell University Susanne M. Bruyère, K. Lisa Yang and Hock E. Tan Institute on Employment and Disability, ILR School, Cornell University Hassan Enayati, K. Lisa Yang and Hock E. Tan Institute on Employment and Disability, ILR School, Cornell University William A. Erickson, K. Lisa Yang and Hock E. Tan Institute on Employment and Disability, ILR School, Cornell University Kevin Hallock, Institute for Compensation Studies, ILR School, Cornell University Arun Karpur, K. Lisa Yang and Hock E. Tan Institute on Employment and Disability, ILR School, Cornell University Lisa Nishii, Human Resource Studies, ILR School, Cornell University Ellice Switzer, K. Lisa Yang and Hock E. Tan Institute on Employment and Disability, ILR School, Cornell University Sarah von Schrader, K. Lisa Yang and Hock E. Tan Institute on Employment and Disability, ILR School, Cornell University Sara Van Looy, K. Lisa Yang and Hock E. Tan Institute on Employment and Disability, ILR School, Cornell University
Crippled Justice, the first comprehensive intellectual history of disability policy in the workplace from World War II to the present, explains why American employers and judges, despite the Americans with Disabilities Act, have been so resistant to accommodating the disabled in the workplace. Ruth O'Brien traces the origins of this resistance to the postwar disability policies inspired by physicians and psychoanalysts that were based on the notion that disabled people should accommodate society rather than having society accommodate them. O'Brien shows how the remnants of postwar cultural values bogged down the rights-oriented policy in the 1970s and how they continue to permeate judicial interpretations of provisions under the Americans with Disabilities Act. In effect, O'Brien argues, these decisions have created a lose/lose situation for the very people the act was meant to protect. Covering developments up to the present, Crippled Justice is an eye-opening story of government officials and influential experts, and how our legislative and judicial institutions have responded to them.
Disability Incarcerated gathers thirteen contributions from an impressive array of fields. Taken together, these essays assert that a complex understanding of disability is crucial to an understanding of incarceration, and that we must expand what has come to be called 'incarceration.' The chapters in this book examine a host of sites, such as prisons, institutions for people with developmental disabilities, psychiatric hospitals, treatment centers, special education, detention centers, and group homes; explore why various sites should be understood as incarceration; and discuss the causes and effects of these sites historically and currently. This volume includes a preface by Professor Angela Y. Davis and an afterword by Professor Robert McRuer.
Drawing on extensive fieldwork and a variety of original sources, Katharina Heyer examines three case studies--Germany, Japan, and the United Nations--to trace the evolution of a disability rights model from its origins in the U.S. through its adaptations in other democracies to its current formulation in international law. She demonstrates that, although notions of disability, equality, and rights are reinterpreted and contested within various political contexts, ultimately the result may be a more robust and substantive understanding of equality. Rights Enabled is a truly interdisciplinary work, combining sociolegal literature on rights and legal mobilization with a deep cultural and sociopolitical analysis of the concept of disability developed in Disability Studies. Heyer raises important issues for scholarship on comparative rights, the global reach of social movements, and the uses and limitations of rights-based activism.
The Willowbrook Warsis a dramatic and illuminating account of the effort to close down a scandal-ridden institution and return its 5,400 handicapped residents to communities in New York. The wars began in 1972 with Geraldo Rivera's televised raid on the Willowbrook State School. They continued for three years in a federal courtroom, with civil libertarian lawyers persuading a conservative and conscience-stricken judge to expand the rights of the disabled, and they culminated in a 1975 consent decree, with the state of New York pledging to accomplish the unprecedented assignment in six years. From 1975 to 1982, David and Sheila Rothman observed this remarkable chapter in American reform of mental disabilities care. Would the state live up to its agreement without "dumping" residents into other nightmarish institutions? Would the lawyers prove as interested in meeting client needs as in securing client rights? Could a tradition-bound bureaucracy create a new network of community services? And finally, would a governor and a legislature tolerate such outside intervention, and if so, for how long? In answering these questions, The Willowbrook Warstakes us behind the scenes to clarify the role of the judiciary, the fate of the underprivileged, and the potential for social justice. In their new afterword, the authors bring the story up to date, describing the results of the closing of the institution in 1987 from the experiences of integrating the former residents into communities to the legal battles between the state of New York and advocates for the mentally handicapped.
For civil rights lawyers who toiled through the 1980s in the increasingly barren fields of race and sex discrimination law, the approval of the Americans with Disabilities Act in 1990 by a nearly unanimous U.S. House and Senate and a Republican President seemed almost fantastic. Within five years of the Act's effective date, however, observers were warning of an unfolding assault on the ADA by federal judges, the media, and other national opinion-makers. A year after the Supreme Court issued a trio of decisions in the summer of 1999 sharply limiting the ADA's reach, another decision invalidated an entire title of the act as it applied to the states. By this time, disability activists and disability rights lawyers were speaking openly of a backlash against the ADA. What happened, why did it happen, and what can we learn from the patterns of public, media, and judicial response to the ADA that emerged in the 1990s? In this book, a distinguished group of disability activists, disability rights lawyers, social scientists and humanities scholars grapple with these questions. Taken together, these essays construct and illustrate a new and powerful theoretical model of sociolegal change and retrenchment that can inform both the conceptual and theoretical work of scholars and the day-to-day practice of social justice activists. Contributors include Lennard J. Davis, Matthew Diller, Harlan Hahn, Linda Hamilton Krieger, Vicki A. Laden, Stephen L. Percy, Marta Russell, and Gregory Schwartz. Backlash Against the ADA will interest disability rights activists, lawyers, law students and legal scholars interested in social justice and social change movements, and students and scholars in disability studies, political science, media studies, American studies, social movement theory, and legal history. Linda Hamilton Krieger is Professor of Law, University of California School of Law, Berkeley.
Cultural Writing. "Our wrists hurt from typing on our too flat keyboards.We put the TV on 'mute' when it gets to noisy in the bar, and follow the action with the captions. We duck into the `handicap stall' at the airport because it's big enough to accommodate us--and our rollbag and our computer bag. Still, we say, the disabled are ruining things for society. They want special keyboards at work to help them type. They want accessible restrooms everywhere. They want more captioning on television. They're always wanting special accommodations"--from MAKE THEM GO AWAY. "This book from long-time disability social issues reporter Mary Johnson is indispensable. It's the genuine article--Johnson was there"--Marta Russell.
In the late-nineteenth and early-twentieth centuries, municipallaws targeting "unsightly beggars" sprang up in cities across America. Seeming to criminalize disability and thus offering a visceral example of discrimination, these "ugly laws" have become a sort of shorthand for oppression in disability studies, law, and the arts. In this watershed study of the ugly laws, Susan M. Schweik uncovers the murky history behind the laws, situating the varied legislation in its historical context and exploring in detail what the laws meant. Illustrating how the laws join the history of the disabled and the poor, Schweik not only gives the reader a deeper understanding of the ugly laws and the cities where they were generated, she locates the laws at a crucial intersection of evolving and unstable concepts of race, nation, sex, class, and gender. Moreover, she explores the history of resistance to the ordinances, using the often harrowing life stories of those most affected by their passage. Moving to the laws' more recent history, Schweik analyzes the shifting cultural memory of the ugly laws, examining how they have been used--and misused--by academics, activists, artists, lawyers, and legislators.
Imagination for Inclusion offers a reconsideration of the ways in which imagination engages and empowers learners across the education spectrum, from primary to adult levels and in all subject areas. Imagination as a natural, expedient, and exciting learning tool should be central to any approach to developing and implementing curriculum, but is increasingly undervalued as learners progress through the education system; this disregards not only imagination¿s potential, but its paramount place in informing truly inclusive approaches to teaching and learning. This book presents a new theory of imagination and includes discussion about its application to teaching and learning to increase the engagement of disaffected students and reinvigorate their relationships with curriculum content. Chapters include key ideas and discussion surrounding the benefits of introducing imaginative practices into the classroom for learners from a range of marginalised backgrounds, such as young people with disabilities and adult learners from socio-economically disadvantaged environments. In exploring imagination in the practice of inclusive education, the book includes chapters from researchers and practitioners in education who have fresh ideas about how learners and teachers have benefited from introducing imaginative pedagogies. The diverse collection, featuring writers with backgrounds from early childhood to adult education, will be essential reading for academics and researchers in the fields of education, inclusive education, social policy, professional development, teacher education and creativity. It will be of particular interest to current and pre-service teachers who want to develop inclusive practice and increase the engagement of all students with formal education.
Bullying in schools affects a high percentage of students with special needs. This ready-to-use guidebook gives K - 12 educators, administrators, and school counsellors the research-based interventions they need to stop bullying in its tracks, and to prevent it before it starts. Using a simple framework of 3 Rs (Recognize, Respond, and Report), you'll master the core components of preventing and addressng bullying and disability-based harassment at the district level, classroom level, and individual level. Practical, proven strategies and tools blend with heartfelt, real-world advice from students who've experienced bullying themselves. An easy fit with your existing initiatives, whether you use PBIS or a commercial anti-bullying program, this essential resource will help you create a safe and secure learning environment for all students to reach their full potential. This book will help you: distinguish bullying from normal childhood conflicts; develop effective anti-bullying interventions for victims, bystanders, and students who exhibit bullying behaviours; weave social-emotional learning into your existing curriculum; understand how teachers and staff may unwittingly contribute to a culture of bullying, and how to stop it; and more.
This groundbreaking volume brings together major figures in Disability Studies in Education (DSE) and Critical Race Theory (CRT) to explore some of today's most important issues in education. Scholars examine the achievement/opportunity gaps from both historical and contemporary perspectives, as well as the overrepresentation of minority students in special education and the school-to-prison pipeline. Chapters also address school reform and the impact on students based on race, class, and dis/ability and the capacity of law and policy to include (and exclude). Readers will discover how some students are included (and excluded) within schools and society, why some citizens are afforded expanded (or limited) opportunities in life, and who moves up in the world and who is trapped at the "bottom of the well." Book Features: A unique exploration of the intersections of race, class, and dis/ability. New insights into longstanding problems of inequity in American education. An examination of the ways in which certain students come to fit into certain categories of dis/ability. Creative ways to achieve changes in theory, research, practice, and policy that will promote more socially just education systems.
This book examines some theoretical and empirical aspects about complexities of inclusion, disability and culture. It challenges the globalized technical and reductionist approach of inclusion and argues that concepts of disability and inclusion are culturally constructed. Disability and inclusion are concepts which do not define a global agenda, in the sense that one size fits all. Rather they should be seen as being completely context dependent and that they should be deconstructed with respect to specific cultural contexts, with respects to society, ethics, religion and history. The main argument of the book is that many cultural backgrounds, including Egyptians, have their own long-standing beliefs and practices which do not define or address disability in the same way as western culture. Such cultural differences in understanding disability may lead to different understandings, conceptualizations and practices of inclusion. The book articulates disability and inclusion within a socio-ethical-religious discourse based on the Islamic underpinnings of equality and differences. This discourse enhances and supports the calls for considering inclusion and disability within a cultural model that takes into account the common values about disability in any given context which consequently will affect the way educational provision is provided in that context. Finally, the book challenges the "psychological" concept of "attitude" that has been represented in the literature simply as a matter of acceptance or rejection. Inclusion, Disability and Culture shows that "attitude" is a complex and context-dependent issue that can't be understood in isolation from the wider context within which such responses were created. Specifically, the role of the social views about disability, religious values, school cultures, educational system and structural and organizational constraints can't be underestimated in understanding teachers' attitudes towards a complex issue like inclusion.
Comprehensively addressing the challenges of transition, this book provides practical knowledge and tools geared toward real-world educators. It presents clear guidelines for all aspects of team-based transition planning for individuals with various levels of disability, illustrated with vignettes of three secondary students who are followed throughout the book. The authors describe evidence-based practices for conducting assessments and promoting optimal outcomes in the areas of employment, postsecondary education, and independent living. Keys to family involvement, self-determination, interagency collaboration, and problem solving are highlighted. Several reproducible forms can be downloaded and printed in a convenient 8 1/2" x 11" size.
Written by two Ivy League graduates who struggled with learning disabilities and ADHD, Learning Outside the Lines teaches students how to take control of their education and find true success with brilliant and easy study suggestions and tips. Every day, your school, your teachers, and even your peers draw lines to measure and standardize intelligence. They decide what criteria make one person smart and another person stupid. They decide who will succeed and who will just get by. Perhaps you find yourself outside the norm, because you learn differently--but, unlike your classmates, you have no system in place that consistently supports your ability and desire to learn. Simply put, you are considered lazy and stupid. You are expected to fail. Learning Outside the Lines is written by two such "academic failures"--that is, two academic failures who graduated from Brown University at the top of their class. Jonathan Mooney and David Cole teach you how to take control of your education and find true success--and they offer all the reasons why you should persevere. Witty, bold, and disarmingly honest, Learning Outside the Lines takes you on a journey toward personal empowerment and profound educational change, proving once again that rules sometimes need to be broken.
Disability is a growing reality. According to the United States Census Bureau, approximately 57 million people--19 percent of the population--had a disability in 2010, more than half being reported as "severe." Interest in disability studies is also growing, in literature, film, art, politics and religion. Exploring the intersection between disability and young adult literature, this collection of new essays fills a gap in scholarship between teachers and YAL scholars. The contributors offer textual analysis, best practices and numerous examples that enable teachers to expose students to dynamic characters who both reflect and contrast with the reader's reality.
A comprehensive history of deafness, signed languages, and the unresolved struggles of the Deaf to be taught in their unspoken tongue Partially deaf due to a childhood illness, Gerald Shea is no stranger to the search for communicative grace and clarity. In this eloquent and thoroughly researched book, he uncovers the centuries-long struggle of the Deaf to be taught in sign language--the only language that renders them complete, fully communicative human beings. Shea explores the history of the deeply biased attitudes toward the Deaf in Europe and America, which illogically forced them to be taught in a language they could neither hear nor speak. As even A.G. Bell, a fervent oralist, admitted, sign language is "the quickest method of reaching the mind of a deaf child." Shea's research exposes a persistent but misguided determination among hearing educators to teach the Deaf orally, making the very faculty they lacked the principal instrument of their instruction. To forbid their education in sign language--the "language of light"--is to deny the Deaf their human rights, he concludes.
What does it mean to engage in Deaf Studies and who gets to define the field? What would a truly deaf-led Deaf Studies research program look like? What are the research practices of deaf scholars in Deaf Studies, and how do they relate to deaf research participants and communities? Whatinnovations do deaf scholars deem necessary in the field of Deaf Studies? In Innovations in Deaf Studies: The Role of Deaf Scholars, volume editors Annelies Kusters, Maartje De Meulder, and Dai O'Brien and their contributing authors tackle these questions and more.Spurred by a gradual increase in the number of Deaf Studies scholars who are deaf, and by new theoretical trends in Deaf Studies, this book creates an important space for contributions from deaf researchers, to see what happens when they enter into the conversation. Innovations in Deaf Studiesexpertly foregrounds deaf ontologies (defined as "deaf ways of being") and how the experience of being deaf is central not only to deaf research participants' own ontologies, but also to the positionality and framework of the study as a whole. Further, this book demonstrates that the research andmethodology built around those ontologies offer suggestions for new ways for the discipline to meet the challenges of the present, which includes productive and ongoing collaboration with hearing researchers.Providing fascinating perspective and insight, Kusters, De Meulder, O'Brien, and their contributors all focus on the underdeveloped strands within Deaf Studies, particularly on areas around deaf people's communities, ideologies, literature, religion, language practices, and politicalaspirations.
Forbidden Signs explores American culture from the mid-nineteenth century to 1920 through the lens of one striking episode: the campaign led by Alexander Graham Bell and other prominent Americans to suppress the use of sign language among deaf people. The ensuing debate over sign language invoked such fundamental questions as what distinguished Americans from non-Americans, civilized people from "savages," humans from animals, men from women, the natural from the unnatural, and the normal from the abnormal. An advocate of the return to sign language, Baynton found that although the grounds of the debate have shifted, educators still base decisions on many of the same metaphors and images that led to the misguided efforts to eradicate sign language. "Baynton's brilliant and detailed history, Forbidden Signs, reminds us that debates over the use of dialects or languages are really the linguistic tip of a mostly submerged argument about power, social control, nationalism, who has the right to speak and who has the right to control modes of speech."--Lennard J. Davis, The Nation "Forbidden Signs is replete with good things."--Hugh Kenner, New York Times Book Review
Language development, and the challenges it can present for individuals who are deaf or hard-of-hearing, have long been a focus of research, theory, and practice in D/deaf studies and deaf education. Over the past 150 years, but most especially near the end of the 20th and beginning of the21st century, advances in the acquisition and development of language competencies and skills have been increasing rapidly. This volume addresses many of those accomplishments as well as remaining challenges and new questions that have arisen from multiple perspectives: theoretical, linguistic, social-emotional, neuro-biological, and socio-cultural. The contributors comprise an international group of prominent scholarsand practitioners from a variety of academic and clinical backgrounds. The result is a volume that addresses, in detail, current knowledge, emerging questions, and innovative educational practice in a variety of contexts. The volume takes on topics such as discussion of the transformation of effortsto identify a "best" language approach (the "sign" versus "speech" debate) to a stronger focus on individual strengths, potentials, and choices for selecting and even combining approaches; the effects of language on other areas of development as well as effects from other domains on language itself;and how neurological, socio-cognitive, and linguistic bases of learning are leading to more specialized approaches to instruction that address the challenges that remain for deaf and hard-of-hearing individuals. This volume both complements and extends The Oxford Handbook of Deaf Studies and DeafEducation, Volumes 1 and 2, going further into the unique challenges and demands for deaf or hard-of-hearing individuals than any other text and providing not only compilations of what is known but setting the course for investigating what is still to be learned.
This collection of new research examines the development of deaf people's autonomy and citizenship discourses as they sought access to full citizenship rights in local and national settings. Covering the period of 1780-1970, the essays in this collection explore deaf peoples' claims to autonomy in their personal, religious, social, and organizational lives and make the case that deaf Americans sought to engage, claim, and protect deaf autonomy and citizenship in the face of rising nativism and eugenic currents of the late nineteenth and early twentieth century. These essays reveal how deaf people used their agency to engage in vigorous debates about issues that constantly tested the values of deaf people as Americans. The debates overlapped with social trends and spilled out into particular physical and social spaces such as clubs and churches, as well as within families. These previously unexplored areas in Deaf history intersect with important subthemes in American history, such as Southern history, religious history, and Western history. The contributors demonstrate that as deaf people pushed for their rights as citizens, they met with resistance from hearing people, and the results of their efforts were decidedly mixed. These works reinforce the Deaf community's longstanding desire to be part of the nation. In Our Own Hands contributes to an increased understanding of the struggle for citizenship and expands our current understanding of race, gender, religion, and other trends in Deaf history.
A look at the gulf that separates the deaf minority from the hearing world, this book sheds light on the mistreatment of the deaf community by a hearing establishment that resists understanding and awareness. Critically acclaimed as a breakthrough when it was first published in 1992, this new edition includes information on the science and ethics of childhood cochlear implants. An indictment of the ways in which experts in the scientific, medical, and educational establishment purport to serve the deaf, this book describes how they, in fact, do them great harm.
This new collection bridges two dynamic academic fields: Women's Studies and Deaf Studies. The 14 contributors to this interdisciplinary volume apply research and methodological approaches from sociology, ethnography, literary/film studies, history, rhetoric, education, and public health to open heretofore unexplored territory. Part One: In and Out of the Community addresses female dynamics within deaf schools; Helen Keller's identity as a deaf woman; deaf women's role in Deaf organizations; and whether or not the inequity in education and employment opportunities for deaf women is bias against gender or disability. Part Two: (Women's) Authority and Shaping Deafness explores the life of 19th-century teacher Marcelina Ruis Y Fernandez; the influence of single, hearing female instructors in deaf education; the extent of women's authority over oralist educational dictates during the 1900s; and a deaf daughter's relationship with her hearing mother in the late 20th century. Part Three: Reading Deaf Women considers two deaf sisters' exceptional creative freedom from 1885 to 1920; the depictions of deaf or mute women in two popular films; a Deaf woman's account of blending the public-private, deaf-hearing, and religious-secular worlds; how five Deaf female ASL teachers define "gender," "feminism," "sex," and "patriarchy" in ASL and English; and 20th-century American Deaf beauty pageants that emphasize physicality while denying Deaf identity, yet also challenge mainstream notions of "the perfect body."
Inspired by the conference "Deaf People in Hitler's Europe, 1933-1945," hosted jointly by Gallaudet University and the United States Holocaust Memorial Museum in 1998, this extraordinary collection, organized into three parts, integrates key presentations and important postconference research. Henry Friedlander begins "Part I: Racial Hygiene" by analyzing the assault on deaf people and people with disabilities as an integral element in the Nazi attempt to implement their theories of racial hygiene. Robert Proctor documents the role of medical professionals in deciding who should be sterilized or forbidden to marry, and whom the Nazi authorities would murder. In an essay written especially for this volume, Patricia Heberer details how Nazi manipulation of eugenics theory and practice facilitated the justification for the murder of those considered socially undesirable. "Part II: The German Experience" commences with Jochen Muhs's interviews of deaf Berliners who lived under Nazi rule, both those who suffered abuse and those who, as members of the Nazi Party, persecuted others, especially deaf Jews. John S. Schuchman describes the remarkable 1932 film Misjudged People, which so successfully portrayed the German deaf community as a vibrant contributor to society that the Nazis banned its showing when they came to power. Horst Biesold's contribution confirms the complicity of teachers who denounced their own students, labeling them hereditarily deaf and thus exposing them to compulsory sterilization. The section also includes the reprint of a chilling 1934 article entitled "The Place of the School for the Deaf in the New Reich," in which author Kurt Lietz rued the expense of educating deaf students, who could not become soldiers or bear "healthy children." In "Part III: The Jewish Deaf Experience," John S. Schuchman discusses the plight of deaf Jews in Hungary. His historical analysis is complemented by a chapter containing excerpts from the testimony of six deaf Jewish survivors who describe their personal ordeals. Peter Black's reflections on the need for more research conclude this vital study of a little-known chapter of the Holocaust.
In this heartfelt memoir, Maria Wallisfurth recounts the lives of her deaf parents in Germany from the turn of the twentieth century through the 1930s. Her mother, Maria Giefer, was born in 1897 and her father, Wilhelm Sistermann, was born in 1896. The author captures the seasonal rhythms and family life of her mother's youth in rural Germany, a time filled as much with hardship as it is with love. When she is old enough, she moves to the nearby city of Aachen to attend a school for deaf children, where she learns to lipread and speak. After her schooling is complete, she returns home to work on the family farm and experiences the privations and fear that accompany World War I. She later goes back to Aachen, where she joins a deaf club and falls in love with Wilhelm, a painter and photographer who was raised in the city. Amidst high unemployment, food shortages, and rapid inflation, they are married in 1925 and two years later the author is born. Under the Nazi regime, Maria and Wilhelm are ordered to undergo forced sterilization. Although their deafness is not hereditary and they submit applications of protest, they are compelled to comply with the law. Despite their dissimilar backgrounds and the political circumstances that roiled their lives, the author's parents showed great love for each other and their only daughter. The Stories They Told Me is a richly detailed document of time and place and a rare account of deaf lives during this era.
Auschwitz was one of the first books to bring the full horror of the Nazi death camps to the American public; this is, as the New York Review of Books said, "the best brief account of the Auschwitz experience available."
A staple of American popular culture during the nineteenth and early twentieth centuries, the freak show seemed to vanish after the Second World War. But as Rachel Adams reveals in Sideshow U.S.A., images of the freak show, with its combination of the grotesque, the horrific, and the amusing, stubbornly reappeared in literature and the arts. Freak shows, she contends, have survived because of their capacity for reinvention. Empty of any inherent meaning, the freak's body becomes a stage for playing out some of the twentieth century's most pressing social and political concerns, from debates about race, empire, and immigration, to anxiety about gender, and controversies over taste and public standards of decency. Sideshow U.S.A. begins by revisiting the terror and fascination the original freak shows provided for their audiences, as well as exploring the motivations of those who sought fame and profit in the business of human exhibition. With this history in mind, Adams turns from live entertainment to more mediated forms of cultural expression: the films of Tod Browning, the photography of Diane Arbus, the criticism of Leslie Fiedler, and the fiction Carson McCullers, Toni Morrison, and Katherine Dunn. Taken up in these works of art and literature, the freak serves as a metaphor for fundamental questions about self and other, identity and difference, and provides a window onto a once vital form of popular culture. Adams's study concludes with a revealing look at the revival of the freak show as live performance in the late 1980s and the 1990s. Celebrated by some, the freak show's recent return is less welcome to those who have traditionally been its victims. At the beginning of a new century, Adams sees it as a form of living history, a testament to the vibrancy and inventiveness of American popular culture, as well as its capacity for cruelty and injustice. "Because of its subject matter, this interesting and complex study is provocative, as well as thought-provoking."—Virginia Quarterly Review
From 1840 until 1940, freak shows by the hundreds crisscrossed the United States, from the smallest towns to the largest cities, exhibiting their casts of dwarfs, giants, Siamese twins, bearded ladies, savages, snake charmers, fire eaters, and other oddities. By today's standards such displays would be considered cruel and exploitative—the pornography of disability. Yet for one hundred years the freak show was widely accepted as one of America's most popular forms of entertainment. Robert Bogdan's fascinating social history brings to life the world of the freak show and explores the culture that nurtured and, later, abandoned it. In uncovering this neglected chapter of show business, he describes in detail the flimflam artistry behind the shows, the promoters and the audiences, and the gradual evolution of public opinion from awe to embarrassment. Freaks were not born, Bogdan reveals; they were manufactured by the amusement world, usually with the active participation of the freaks themselves. Many of the "human curiosities" found fame and fortune, becoming the celebrities of their time, until the ascent of professional medicine transformed them from marvels into pathological specimans.
This volume is a major contribution to the field of disability history in the ancient world. Contributions from leading international scholars examine deformity and disability from a variety of historical, sociological and theoretical perspectives, as represented in various media. The volume is not confined to a narrow view of ¿antiquity¿ but includes a large number of pieces on ancient western Asia that provide a broad and comparative view of the topic and enable scholars to see this important topic in the round. Disability in Antiquity is the first multidisciplinary volume to truly map out and explore the topic of disability in the ancient world and create new avenues of thought and research.
A decade ago, former military counterintelligence officer Terry Henry joined his precocious young daughter, Kyria, on a trip to a nursing home in order to allow its residents to play with their family dog, a golden retriever named riley. Terry was astounded by the transformations that unfolded before his eyes. Soon after, Terry and Kyria started their service dog organization, paws4people, with the goal of pairing dogs with human beings in need of healing, including traumatized and wounded war veterans and children living with physical, emotional, and intellectual disabilities. In A Dog's Gift, award-winning journalist and author Bob Drury movingly captures the story of a year in the life of paws4people and the broken bodies and souls the organization mends. The book follows the journey of pups bred by the organization from their loving, if rigorous, early training to an emotional event that terry and Kyria have christened "the bump," where each individual service dog chooses its new owner through an almost mystical connection that ignites the healing process. incorporating vivid storytelling, insights into canine wisdom, history, science, and moving tales of personal transformation, A Dog's Gift is a story of miracles bound to be embraced by not only the 60 million Americans who own dogs, but by anyone with a full heart and a loving soul.
In the mid-nineteenth century, Laura Bridgman, a young child from New Hampshire, became one of the most famous women in the world. Philosophers, theologians, and educators hailed her as a miracle, and a vast public followed the intimate details of her life with rapt attention. This girl, all but forgotten today, was the first deaf and blind person ever to learn language. Laura's dark and silent life was transformed when she became the star pupil of the educational crusader Dr. Samuel Gridley Howe. Against the backdrop of an antebellum Boston seething with debates about human nature, programs of moral and educational reform, and battles between conservative and liberal Christians, Freeberg tells this extraordinary tale of mentor and student, scientist and experiment. Under Howe's constant tutelage, Laura voraciously absorbed the world around her, learning to communicate through finger language, as well as to write with confidence. Her remarkable breakthroughs vindicated Howe's faith in the power of education to overcome the most terrible of disabilities. In Howe's hands, Laura's education became an experiment that he hoped would prove his own controversial ideas about the body, mind, and soul. Poignant and hopeful, The Education of Laura Bridgman is both a success story of how a sightless and soundless girl gained contact with an ever-widening world, and also a cautionary tale about the way moral crusades and scientific progress can compromise each other. Anticipating the life of Helen Keller a half-century later, Laura's is a pioneering story of the journey from isolation to accomplishment, as well as a window onto what it means to be human under the most trying conditions.
"The world is a surreal pageant," writes Stephen Kuusisto. "Ahead of me the shapes and colors suggest the sails of Tristan's ship or an elephant's ear floating in air, though in reality it is a middle-aged man in a London Fog rain coat which billows behind him in the April wind." So begins Kuusisto's memoir, Planet of the Blind, a journey through the kaleidoscope geography of the partially-sighted, where everyday encounters become revelations, struggles, or simple triumphs. Not fully blind, not fully sighted, the author lives in what he describes as "the customs-house of the blind", a midway point between vision and blindness that makes possible his unique perception of the world. In this singular memoir, Kuusisto charts the years of a childhood spent behind bottle-lens glasses trying to pass as a normal boy, the depression that brought him from obesity to anorexia, the struggle through high school, college, first love, and sex. Ridiculed by his classmates, his parents in denial, here is the story of a man caught in a perilous world with no one to trust--until a devastating accident forces him to accept his own disability and place his confidence in the one relationship that can reconnect him to the world--the relationship with his guide dog, a golden Labrador retriever named Corky. With Corky at his side, Kuusisto is again awakened to his abilities, his voice as a writer and his own particular place in the world around him. Written with all the emotional precision of poetry, Kuusisto's evocative memoir explores the painful irony of a visually sensitive individual--in love with reading, painting, and the everyday images of the natural world--faced with his gradual descent into blindness. Folded into his own experience is the rich folklore the phenomenon of blindness has inspired throughout history and legend.
What does it mean to be mentally retarded? This book features two autobiographical accounts by Ed and Patty, former inmates of institutions. The authors argue that Ed and Patty challenge the very concept of mental retardation and assert that it is, in fact, an imaginary disease.
As a correspondent for ABC's Day One, Hockenberry has traveled SCUD-menaced streets in Jerusalem, the mountains of war-torn Iraq, and New York's Great White Way--in a wheelchair. Addressing his subjects as a thought-provoking journalist first, an insightful iconoclast second, and a man who happens to be physically challenged last, he provides readers with an intriguing account of his many exploits.
Conjoined twins Chang and Eng Bunker have fascinated the world since the nineteenth century. In her captivating book, "Chang and Eng Reconnected," Cynthia Wu traces the OC Original Siamese TwinsOCO through the terrain of American culture, showing how their inseparability underscored tensions between individuality and collectivity in the American popular imagination.a Using letters, medical documents and exhibits, literature, art, film, and family lore, Wu provides a trans-historical analysis that presents the Bunkers as both a material presence and as metaphor. She also shows how the twins figure in representations of race, disability, and science in fictional narratives about nation building. As astute entrepreneurs, the twins managed their own lives; nonetheless, as "Chang and Eng Reconnected" shows, American culture has always viewed them through the multiple lenses of difference."
Religion plays a critical role in determining how disability is understood and how persons with disabilities are treated. Examining the world's religions through the lens of disability studies not only peers deeply into the character of a particular religion, but also teaches something brand new about what it means to respond to people living with physical and mental differences. Disability and World Religions introduces readers to the rich diversity of the world's religionsâBuddhism, Judaism, Islam, Christianity, Hinduism, Confucianism, Daoism, and Native American traditions. Each chapter introduces a specific religious tradition in a manner that offers innovative approaches to familiar themes in contemporary debates about religion and disability, including personhood, autonomy, community, ability, transcendence, morality, practice, the interpretation of texts, and conditioned claims regarding the normal human body or mind. By portraying varied and complex perspectives on the intersection of religion and disability, this volume demonstrates that religious teachings and practices across the globe help establish cultural constructions of normalcy. The volume also interrogates the constructive role religion plays in determining expectations for human physical and mental behavior and in establishing standards for measuring conventional health and well-being. Disability and World Religions thus offers arespectful exploration ofglobal faith traditionsandcultivates creative ways to respond to the fields of both religiousand disability studies.
Blacks with white skin. Since colonial times, showmen have exhibited the bodies of African Americans with white or gradually whitening skin in taverns, dime museums, and circus sideshows. The term "white Negro" has served to describe an individual born with albinism as well as those who have vitiligo, a disorder that robs the skin of its pigment in ever-growing patches. In The White African American Body, Charles D. Martin examines the proliferation of the image of the white Negro in American popular culture, from the late eighteenth century to the present day. This enigmatic figure highlights the folly of the belief in immutable racial differences. If skin is a race marker, what does it mean for blacks literally to be white? What does this say not only about blacks but also about whites? Scientists have probed this mystery, philosophers have pondered its meaning, and artists have profited from the sale of images of these puzzling figures. Lavishly illustratedwith many rarely seen photographsThe White African American Body shows how the white Negro occupied, and still occupies, the precarious position between white and black, and how this figure remains resilient in American culture.
This path-breaking book analyses the experiences of young sporting women with physical impairments. Taking phenomenology as a point of departure, Elisabet Apelmo explores how the young women handle living with a body which, on the one hand, is viewed as deviant - the disabled body - and on the other hand is viewed as accomplished - the sporting body. A polarization is apparent between the weak, which is manifested through the expression of belonging as "we", and the strong individual. The subject position as strong, positive and capable - as a reaction towards the weak, the negative - is one of the few positions that are available to them. Furthermore, the book demonstrates the strategies of resistance the young women develop against the marginalisation, stereotyping and othering they experience in their everyday lives. Finally, the author discusses the paradox of gender. Disabled bodies are often seen as non-gendered, however, these young women's experiences are structured by both the gender regimes within sports and the larger gender order of the society.
An impassioned and moving account of a father's attempt to realize the full potential of his child, born with Down syndrome. In telling the story of his son's development during the crucial first four years of life--learning to walk and talk, to move into the world and the lives of those around him--Michael Berube engages the charged issues involved in James's growth.
In Brilliant Imperfection Eli Clare uses memoir, history, and critical analysis to explore cure--the deeply held belief that body-minds considered broken need to be fixed. Cure serves many purposes. It saves lives, manipulates lives, and prioritizes some lives over others. It provides comfort, makes profits, justifies violence, and promises resolution to body-mind loss. Clare grapples with this knot of contradictions, maintaining that neither an anti-cure politics nor a pro-cure worldview can account for the messy, complex relationships we have with our body-minds. The stories he tells range widely, stretching from disability stereotypes to weight loss surgery, gender transition to skin lightening creams. At each turn, Clare weaves race, disability, sexuality, class, and gender together, insisting on the nonnegotiable value of body-mind difference. Into this mix, he adds environmental politics, thinking about ecosystem loss and restoration as a way of delving more deeply into cure. Ultimately Brilliant Imperfection reveals cure to be an ideology grounded in the twin notions of normal and natural, slippery and powerful, necessary and damaging all at the same time.
This is the first book to explore how far disability challenges dominant understandings of rurality, identity, gender and belonging within the rural literature. The book focuses particularly on the ways disabled people give, and are given, meaning and value in relation to ethical rural considerations of place, physical strength, productivity and social reciprocity. A range of different perspectives to the issues of living rurally with a disability inform this work. It includes the lived experience of people with disabilities through the use of life history methodologies, rich qualitative accounts and theoretical perspectives. It goes beyond conventional notions of rurality, grounding its analysis in a range of disability spaces and places and including the work of disability sociologists, geographers, cultural theorists and policy analysts. This interdisciplinary focus reveals the contradictory and competing relations of rurality for disabled people and the resultant impacts and effects upon disabled people and their communities materially, discursively and symbolically. Of interest to all scholars of disability, rural studies, social work and welfare, this book provides a critical intervention into the growing scholarship of rurality that has bypassed the pivotal role of disability in understanding the lived experience of rural landscapes.
The lives of many disabled people in Europe and North America have improved over the past two decades through innovative technologies and the efforts of the disability rights movement. These changes have been spreading to other societies around the globe--albeit unevenly. In this collection of essays, leading scholars explore global changes in disability awareness, technology, and policy from the viewpoint of disabled people and their families in a wide range of local contexts. The authors report on ethnographic research in Brazil, Uganda, Botswana, Somalia, Britain, Israel, China, Egypt, India, and Japan. They address the definition of disability, the new eugenics, human rights in local contexts, domestic and state citizenship of disabled people, and issues of identity and belonging.
This concise, integrated introduction to the complex relationship between disability and the media offers a roadmap to the key areas of participation, access and representation. Bringing together international theoretical work and research on disability, with analysis and examples across a diverse range of media forms - from radio, to news, popular television and new digital technologies - this unique text explores the potential for establishing a more diverse, rich and just media. Providing an approachable but critical introduction to the field, Katie Ellis and Gerard Goggin show how disability - like the closely connected areas of race and gender - is a pervasive issue in how the media represent society. Engaging and accessible, this is an invaluable resource for students of Media and Communication Studies, Cultural Studies and Disability Studies, as well as teachers, researchers, media professionals, policy makers, and anyone interested in the intersections of disability and media.
What are the unconscious fantasies circulating in representations of disability? What role do these fantasies play in defining the condition of disability? What can these fantasies teach us about human vulnerability writ large? The Fantasy of Disabilityexplores how popular culture texts, such as Degrassi: The Next Generationand Glee, fantasize about what life with a physical disability must be like, while at the same time exerting tremendous pressure on disabled individuals to conform their identity and behaviour to fit within the margins of these societally perpetuated archetypes. Rather than merely engaging with how disability is represented, though, this text investigates how representations of disability reveal their nondisabled producers to be perpetually anxious subjects, doomed to fear not just the disabled subject but the very reality of disability lurking within. Situated at the nexus of disability studies, media studies and psychology, this text presents an innovative way of analyzing representations of disability in popular culture, inverting the psychoanalytic gaze back upon the nondisabled to investigate how disability can become a lens through which to interrogate the normate subject.
In Cultural Locations of Disability, Sharon L. Snyder and David T. Mitchell trace how disabled people came to be viewed as biologically deviant. The eugenics era pioneered techniques that managed "defectives" through the application of therapies, invasive case histories, and acute surveillance techniques, turning disabled persons into subjects for a readily available research pool. In its pursuit of normalization, eugenics implemented disability regulations that included charity systems, marriage laws, sterilization, institutionalization, and even extermination. Enacted in enclosed disability locations, these practices ultimately resulted in expectations of segregation from the mainstream, leaving today's disability politics to focus on reintegration, visibility, inclusion, and the right of meaningful public participation. Snyder and Mitchell reveal cracks in the social production of human variation as aberrancy. From our modern obsessions with tidiness and cleanliness to our desire to attain perfect bodies, notions of disabilities as examples of human insufficiency proliferate. These disability practices infuse more general modes of social obedience at work today. Consequently, this important study explains how disabled people are instrumental to charting the passage from a disciplinary society to one based upon regulation of the self.
Giving Voice to Profound Disabilityis devoted to exploring the lives of people with profound and multiple learning difficulties and disabilities, and brings together the voices of those best placed to speak about the rewards and challenges of living with, supporting and teaching this group of vulnerable and dependent people - including parents, carers and teachers. Along with their personal insights the book offers philosophical reflections on the status, role and treatment of profoundly disabled people, and the subjects discussed include: Respect and human dignity Dependency Freedom and human capabilities Rights, equality and citizenship Valuing people Caring for others The experience and reflections presented in this book illustrate the progress and achievements in supporting and teaching people with profound disabilities, but they also reveal the challenges involved in enabling them to develop their full potential. It is suggested, also, that these challenges apply not only to this group, but also to people who, through sickness, accident and old age, face equivalent levels of dependency and disability. Giving Voice to Profound Disability will be of interest to all those involved in the lives of severely and profoundly disabled people, including parents, carers, teachers, nurses, therapists, academics, researchers, students and policymakers.
This book explores the concept of "occupation" in disability well beyond traditional clinical formulations of disability: it considers disability not in terms of pathology or impairment, but as a range of unique social identities and experiences that are shaped by visible or invisible diagnoses/impairments, socio-cultural perceptions and environmental barriers and offers innovative ideas on how to apply theoretical training to real world contexts. Inspired by disability justice and "Disability Occupy Wall Street / Decolonize Disability" movements in the US and related movements abroad, this book builds on politically engaged critical approaches to disability that intersect occupational therapy, disability studies and anthropology. "Occupying Disability" will provide a discursive space where the concepts of disability, culture and occupation meet critical theory, activism and the creative arts. The concept of "occupation" is intentionally a moving target in this book. Some chapters discuss occupying spaces as a form of protest or alternatively, protesting against territorial occupations. Others present occupations as framed or problematized within the fields of occupational therapy and occupational science and anthropology as engagement in meaningful activities. The contributing authors come from a variety of professional, academic and activist backgrounds to include perspectives from theory, practice and experiences of disability. Emergent themes include: all the permutations of the concept of "occupy," disability justice/decolonization, marginalization and minoritization, technology, struggle, creativity and change. This book will engage clinicians, social scientists, activists and artists in dialogues about disability as a theoretical construct and lived experience.
Points of Contact brings together contributions by leading writers, artists, scholars, and critics to provide a remarkably broad and consistently engaging look at the intersection of disability and the arts. The contributions include essays and memoirs by a wide range of disabled and nondisabled writers, including Bell Gale Chevigny, Sandra Gilbert, Joseph Grigely, Georgina Kleege, Victoria Ann Lewis, Carol Poore, Tobin Siebers, and Rosemarie Garland Thomson among others; poetry by Brooke Horvath, Joan Seliger Sidney, William Stafford, and others; fiction by Stephen Dixon, Michael Downs, Georgina Kleege, Dallas Wiebe, and others. The collection covers a broad range of subjects and concerns that lie at the intersection of disability and the arts, including fetal alcohol syndrome, education, and identity; representations of disability in the visual arts and the complicated position of the disabled spectator; the impact of cancer on the patient and the caregiver; the similarities between beauty pageants and freak shows; Alzheimer's disease; prosthetic devices; the mechanized disabled body; disability and performance; and profiles of Helen Keller and Annie Sullivan, Christopher Reeve, Franklin Roosevelt, and sado-masochistic performance artist Bob Flanagan. Points of Contact: Disability, Art, and Culture was originally published as a special double issue of the well regarded literary magazine, the Michigan Quarterly Review. Now available in a single, convenient paperback volume, its broad range of perspectives on disability and its entertaining and engaging selections will appeal to general readers, scholars, and students alike. Susan Crutchfield is lecturer in English, University of Michigan. Marcy Epstein teaches literature at The Roeper School and women's studies at Henry Ford Community College.
In recent years, attending to diversity in the cultivation of embodied identity has been given additional impetus as a result of intersectionality theory. Despite this, a key gap remains in terms of knowledge about masculinity and disability. This book addresses this lacuna through ten empirical chapters organised through the inter-related themes of corporeality, pedagogy and the critique of otherness. Each of the chapters positions the subject of masculinity and disability as a site of cultural pedagogy by affirming different ways of knowing of masculinity beyond dominant ideologies that normalise a particular masculine body and relegate disabled masculinities to the position of abnormal 'Other'. Part One focuses on pedagogy. Through the materialities of 'medicalized colonialism', imprimaturs of 'relational genealogies', 'compounding differences' and an analytical exposition of some of the neo-colonial conditions of the Global South within spatially-considered places of the Global North, Chapter 1 examines the denial of human rights to the Indigenous Anishinaabe community of Shoal Lake 40 in Canada. Chapter 1 theorises masculine corporeality in terms that take seriously First Nations', national and transnational body politics seriously. Chapter 2 examines the ways that movement and affect serve as a form of pedagogy for boys with autism spectrum in schools. Part Two's focus on corporeality includes an examination of the nexus of disability and diagnosis in the context of transgender men's experiences of mental health, and a discussion of the ways that intersex individuals who identify as men and have experienced 'genital normalising surgery' actively negotiate pluralised masculinities. The focus on media in Part Three encompasses a study of the mis-interpellation of the disabled male subject in Australian male literature, research on the discursive strategies utilised in media representations of disabled veterans in Turkey, and an analysis of the political implications of depictions of masculinity, disability and sexualities in a variety television program. Part Four's theme of self-stylisation takes up the questions of men's reconstructions of masculinity in light of Lyme Disease, the potential pleasures of heterosexuality for young men with a hearing disability in the realm of Australian-Rules Football, and the diverse ways that disabled men negotiate patriarchal masculinity in intimate relationships.
Supporting Families of Children with Developmental Disabilities: Evidence-based and Emerging Practices provides a comprehensive review of the empirical evidence on interventions for families of individuals - ranging from post-preschool age to adulthood - with developmental disabilities. Thebook presents both narrative and meta-analytic syntheses of a large body of research to evaluate which interventions meet contemporary standards as evidence based practices. The body of studies reviewed in the book has not previously been gathered into one volume, nor evaluated as a whole for the quality and extent of the evidence. The research is presented in the context of contemporary social policy and practices aimed at maximizing the development of children withdisabilities while increasing the quality of life of their families. The criteria and procedures followed for identifying, reviewing, evaluating, and categorizing the studies are articulated in line with other major professional standards. Individual chapters focus on several different schools ofpractice, including: group psycho-educational interventions, behavioral parent training, multiple component interventions, supportive interventions for families of children with autism, home- and school-based practices, self-help groups, and advocacy programs. Supporting Families of Children with Developmental Disabilities is an important tool for moving the disability field forward for future research, practice, and social policy.
The "man born blind restored to light" was one of two foundational myths of the Enlightenment, according to Foucault. With ophthalmic surgery in its infancy, the fascination with blindness and what the blind "see" once their vision is restored remained largely hypothetical. Was being blind, asDescartes once remarked, like "seeing with the hands"? Did evidence from early ophthalmic surgery resolve debates about the relationship between vision and touch in the newly sighted? Has the standard representation of blind figures in literature been modified by recent autobiographical accounts ofblind and vision impaired writers and poets? As this book shows, much interest in the philosophy and psychology of blindness was prompted by the so-called 'Molyneux Question' which Irish scientist Molyneux asked of English philosopher Locke in 1688. The question concerns "sensory substitution", the translation between vision and touch, whichwould effect practical outcomes for the blind, including the development of Braille, the first school for the blind in Paris, and even present day Tactile-Visual Sensory Substitution (TVSS) technologies. Through an unfolding historical, philosophical, and literary narrative that encompasses Locke,Molyneux, and Berkeley in Britain, and Diderot, Voltaire, and Buffon in France, this book explores how the Molyneux Question and its aftermath has influenced attitudes towards blindness by the sighted, and technologies for the blind and vision impaired, to this day.
The disability of blindness is a learned social role. The various attitudes and patterns of behavior that characterize people who are blind are not inherent in their condition but, rather, are acquired through ordinary processes of social learning. The Making of Blind Men is intended as a systematic and integrated overview of the blindness problem in America. Dr. Scott chronicles which aspects of this problem are being dealt with by organizations for the blind and the effectiveness of this intervention system. He details the potential consequences of blind people becoming clients of blindness agencies by pointing out that many of the attitudes, behavior patterns, and qualities of character that have been assumed to be given to blind people by their condition are, in fact, products of socialization. As the self-concepts of blind men are generated by the same processes of socialization that shape us all, Dr. Scott puts forth the challenge of reforming the organized intervention system by critically evaluating the validity of blindness workers' assumptions about blindness and the blind. It is felt that an enlightened work force can then render the socialization process of the blind into a rational and deliberate force for positive change.
The experience of living and working with schizophrenia is often fraught with challenges and setbacks. This book is a comprehensive attempt to explain why, in spite of near-miraculous advances in medication and treatment, persons with mental illness fare worse than almost any other disadvantaged group in the labor market. As a researcher of economics and disability and the mother of a son with schizophrenia, the author speaks from both professional and personal experience. First, she looks at societal factors that affect employment outcomes for persons with schizophrenia (or other serious mental illness), including stigma and discrimination, investments in human capital, the quality of mental health services, and the support of family and friends. Then she examines workplace factors that affect employment outcomes, including employer mandates in the Americans with Disabilities Act, the decision to disclose a diagnosis of mental illness at work, the interaction between job demands and functional limitations, and job accommodations for persons with a serious mental illness. Giving weight to both perspectives, the final chapter outlines a set of policy recommendations designed to improve employment outcomes for this population.
The problem of how to treat the mentally handicapped attracted much attention from American reformers in the first half of the twentieth century. In this book, Steven Noll traces the history and development of institutions for the 'feeble-minded' in the South between 1900 and 1940. He examines the influences of gender, race, and class in the institutionalization process and relates policies in the South to those in the North and Midwest, regions that had established similar institutions much earlier. At the center of the story is the debate between the humanitarians, who advocated institutionalization as a way of protecting and ministering to the mentally deficient, and public policy adherents, who were primarily interested in controlling and isolating perceived deviants. According to Noll, these conflicting ideologies meant that most southern institutions were founded without a clear mission or an understanding of their relationship to southern society at large. Noll creates a vivid portrait of life and work within institutions throughout the South and the impact of institutionalization on patients and their families. He also examines the composition of the population labeled feeble-minded and demonstrates a relationship between demographic variables and institutional placement, including their effect on the determination of a patient's degree of disability. Originally published in 1995. A UNC Press Enduring Edition -- UNC Press Enduring Editions use the latest in digital technology to make available again books from our distinguished backlist that were previously out of print. These editions are published unaltered from the original, and are presented in affordable paperback formats, bringing readers both historical and cultural value.
WINNER OF THE 2018 NATIONAL WOMEN'S STUDIES ASSOCIATION ALISON PIEPMEIER BOOK PRIZE Linking powerful first-person narratives with structural analysis, The Pedagogy of Pathologization explores the construction of criminal identities in schools via the intersections of race, disability, and gender. amid the prevalence of targeted mass incarceration. Focusing uniquely on the pathologization of female students of color, whose voices are frequently engulfed by labels of deviance and disability, a distinct and underrepresented experience of the school-to-prison pipeline is detailed through original qualitative methods rooted in authentic narratives. The book¿s DisCrit framework, grounded in interdisciplinary research, draws on scholarship from critical race theory, disability studies, education, women¿s and girl¿s studies, legal studies, and more.
Delve into poetry, essays, short fiction, photography, paintings, and drawings in the first-ever anthology entirely by autistic people of color, featuring 61 writers and artists from seven countries. The work here represents the lives, politics, and artistic expressions of Black, Brown, Latinx, Indigenous, Mixed-Race, and other racialized and people of color from many autistic communities, often speaking out sharply on issues of marginality, intersectionality, and liberation.
Re-Presenting Disabilityaddresses issues surrounding disability representation in museums and galleries, a topic which is receiving much academic attention and is becoming an increasingly pressing issue for practitioners working in wide-ranging museums and related cultural organisations. This volume of provocative and timely contributions, brings together twenty researchers, practitioners and academics from different disciplinary, institutional and cultural contexts to explore issues surrounding the cultural representation of disabled people and, more particularly, the inclusion (as well as the marked absence) of disability-related narratives in museum and gallery displays. The diverse perspectives featured in the book offer fresh ways of interrogating and understanding contemporary representational practices as well as illuminating existing, related debates concerning identity politics, social agency and organisational purposes and responsibilities, which have considerable currency within museums and museum studies. Re-Presenting Disabilityexplores such issues as: In what ways have disabled people and disability-related topics historically been represented in the collections and displays of museums and galleries? How can newly emerging representational forms and practices be viewed in relation to these historical approaches? How do emerging trends in museum practice - designed to counter prejudiced, stereotypical representations of disabled people - relate to broader developments in disability rights, debates in disability studies, as well as shifting interpretive practices in public history and mass media? What approaches can be deployed to mine and interrogate existing collections in order to investigate histories of disability and disabled people and to identify material evidence that might be marshalled to play a part in countering prejudice? What are the implications of these developments for contemporary collecting? How might such purposive displays be created and what dilemmas and challenges are curators, educators, designers and other actors in the exhibition-making process, likely to encounter along the way? How do audiences - disabled and non-disabled - respond to and engage with interpretive interventions designed to confront, undercut or reshape dominant regimes of representation that underpin and inform contemporary attitudes to disability?
"Disability Aesthetics ambitiously redefines both 'disability' and 'aesthetics,' showing us that disability is central not only to modern art but also to the way we apprehend (and interact with) bodies and buildings. Along the way, Tobin Siebers revisits the beautiful and the sublime, 'degenerate' art and 'disqualified' bodies, culture wars and condemned neighborhoods, the art of Marc Quinn and the fiction of Junot D#65533;az---and much, much more. Disability Aesthetics is a stunning achievement, a must-read for anyone interested in how to understand the world we half create and half perceive." ---Michael B#65533;rub#65533;, Paterno Family Professor in Literature, Pennsylvania State University "Rich with examples of the disabled body in both historical and modern art, Tobin Siebers's new book explores how disability problematizes commonly accepted ideas about aesthetics and beauty. For Siebers, disability is not a pejorative condition as much as it is a form of embodied difference. He is as comfortable discussing the Venus de Milo as he is discussing Andy Warhol. Disability Aesthetics is a prescient and much-needed contribution to visual & critical studies." ---Joseph Grigely, Professor of Visual and Critical Studies, The School of the Art Institute of Chicago Disability Aesthetics is the first attempt to theorize the representation of disability in modern art and visual culture. It claims that the modern in art is perceived as disability, and that disability is evolving into an aesthetic value in itself. It argues that the essential arguments at the heart of the American culture wars in the late twentieth century involved the rejection of disability both by targeting certain artworks as "sick" and by characterizing these artworks as representative of a sick culture. The book also tracks the seminal role of National Socialism in perceiving the powerful connection between modern art and disability. It probes a variety of central aesthetic questions, producing a new understanding of art vandalism, an argument about the centrality of wounded bodies to global communication, and a systematic reading of the use put to aesthetics to justify the oppression of disabled people. In this richly illustrated and accessibly written book, Tobin Siebers masterfully demonstrates the crucial roles that the disabled mind and disabled body have played in the evolution of modern aesthetics, unveiling disability as a unique resource discovered by modern art and then embraced by it as a defining concept. Tobin Siebers is V. L. Parrington Collegiate Professor of English Language and Literature and Art and Design at the University of Michigan. His many books include Disability Theory and The Subject and Other Subjects: On Ethical, Aesthetic, and Political Identity. A volume in the series Corporealities: Discourses of Disability
In a tradition extending from the medieval era to the early twentieth century, visually disabled Japanese women known as goze toured the Japanese countryside as professional singers and contributed to the vitality of rural musical culture. The goze sang unique narratives (many requiringseveral hours to perform) as well as a huge repertory of popular ballads and short songs, typically accompanied by a three-stringed lute known as the shamisen. During the Edo period (1600-1868) goze formed guild-like occupational associations and created an iconic musical repertory. They wereremarkably successful in fighting discrimination accorded to women, people with physical disabilities, the poor, and itinerants, using their specialized art to connect directly to the commoner public. The best documented goze lived in Echigo province in the Japanese northwest. Although theiractivities peaked in the nineteenth century, some women continued to tour until the middle of the twentieth. The last active goze survived until 2005. In Goze: Blind Women and Musical Performance in Traditional Japan, author Gerald Groemer argues that goze activism was primarily a matter of the agency of performance itself. Groemer shows that the solidarity goze achieved with the rural public through narrative and music was based on theconvergence of the goze's desire to achieve social autonomy and the wish of lower-class to mitigate the cultural deprivation to which they were otherwise so often subject. It was this correlation of emancipatory interests that allowed goze to flourish and attain a degree of social autonomy. Far frombeing pitied as helpless victims, goze were recognized as masterful artisans who had succeeded in transforming their disability into a powerful social tool and who could act as agents of widespread cultural development.As the first full-length scholarly work on goze in English, this book is sure to prove an invaluable resource to scholars and students of Japanese culture, Japanese music, ethnomusicology, and disability studies worldwide.
Blind Visitor Experiences at Art Museums seeks to answer two questions: 1.Given the guiding principle of visual art being understood only by sight, what do people understand when sight is diminished or not there? 2.Moreover, given the experience of blindness, what are the effects of vision loss or no vision on a cultural identity in art? It does this by exploring seven in-depth case studies of visitors to the education department at the Metropolitan Museum of Art, New York, and the experiences of leading groups by two teachers. In addition, this book includes findings from participant observations in classes and touch tours for blind and visually impaired people at the Metropolitan Museum of Art. After reading this book, readers will understand both passive and active social exclusion from the museum's facilities (active exclusion is defined as a deliberate act of exclusion based on the belief that blind people are incapable of understanding visual art, whereas passive exclusion is defined as exclusion resulting from an aspect of miseducation, such as inappropriate building design or learning materials, or a lack of training, knowledge, resources, access materials or buildings).
This is the first book of its kind to feature interdisciplinary art history and disability studies scholarship. Art historians have traditionally written about images of figures with impairments and artworks by disabled artists, without integrating disability studies scholarship, while many disability studies scholars discuss works of art, but do not necessarily incorporate art historical research and methodology. The chapters in this volume emphasize a shift away from the medical model of disability that is often scrutinized in art history by considering the social model and representations of disabled figures from a range of styles and periods, mostly from the twentieth century. Topics addressed include visible versus invisible impairments; scientific, anthropological, and vernacular images of disability; and the theories and implications of looking/staring versus gazing. They also explore ways in which art responds to, envisions, and at times stereotypes and pathologizes disability. The insights offered in this book contextualize understanding of disability historically, as well as in terms of medicine, literature, and visual culture.
Originally published in 1983, Hayden Herrera's portrait of Frida Kahlo is the definitive biography of the tempestuous and original Mexican artist. Married to Diego Rivera and deeply involved in Mexican politics, she also had affairs with such diverse historical figures as Isamu Noguchi and Leon Trotsky. Her paintings, often autobiographical, have reached a wider audience through exhibitions over the last 20 years. Frida is both the basis for the new Miramax film and the primary source people will turn to for all the information on this dynamic figure of the 20th century.
Bertolt Brecht's silent Kattrin in Mother Courage, or the disability performance lessons of his Peachum in The Threepenny Opera; Tennessee Williams' limping Laura Wingfield in The Glass Menagerie and hard-of-hearing Bodey in A Lovely Sunday for Creve Coeur; Samuel Beckett's blind Hamm and his physically disabled parents Nagg and Nell in Endgame - these and many further examples attest to disability's critical place in modern drama. This Companion explores how disability performance studies and theatre practice provoke new debate about the place of disability in these works. The book traces the local and international processes and tensions at play in disability theatre, and offers a critical investigation of the challenges its aesthetics pose to mainstream and traditional practice. The book's first part surveys disability theatre's primary principles, critical terms, internal debates and key challenges to theatre practice. Examining specific disability theatre productions of modern drama, it also suggests how disability has been re-envisaged and embodied on stage. In the book's second part, leading disability studies scholars and disability theatre practitioners analyse and creatively re-imagine modern drama, demonstrating how disability aesthetics press practitioners and scholars to rethink these works in generative, valuable and timely ways.
Disabling Characters provides detailed analyses of selected young adult (YA) novels and short stories. It looks at the relative agency of the disabled character, the behavior of the other characters, the environment in which the character must live, the assumptions that seem to be underlying certain scenes, and the extent to which the book challenges or perpetuates an unsatisfactory status quo. Class discussions about disability-themed literature, however well intentioned, have the potential to reinforce harmful myths or stereotypes about disability. In contrast, discussions informed by a critical disability studies perspective can help readers develop more sophisticated views of disability and contribute to a more just and inclusive society. The book examines discussion questions, lesson plans, study guides, and other supplemental materials aimed at students studying these texts, and it suggests more critical questions to pose about these texts and the positive and/or negative work they do, perhaps subliminally, in our culture. This book is a much-needed addition to college classes in YA literature, literary analysis, methods of teaching literature, disability studies, cultural studies, contemporary criticism, special education, and adolescent literacy.
2016 Gold Winner - in the Autism Related Disorders category - from the Special Needs Book Awards. The award recognizes authors who have written books related to disabilities, impairments, disorders, special education and special needs issues. This is a book for those who have a stake in and curiosity about the relationship between autism and the stage. Performance here covers theater to therapy, film to biography, art and beyond. If you are a theater or film critic, a speech or drama therapist, a higher education specialist or special education instructor, a parent of a child on the autism spectrum or an individual with ASD interested in theatre, this book may hold unique value for you. This work is meant to cover a range of issues and reach out to audiences, critics, professionals and parents who want to know more about performance representations of autism. One message reverberates throughout the book: each autistic person illustrates different approaches to and perspectives on life. We become richer each time we come to understand these new perspectives and performance powerfully enhances our understanding of them. Autism Spectrum Disorders include alternative modes of processing information, recording images, discoursing with others, and interpreting social scenes. In this conversation, performance can function as an analytical lens, a representational space, a means of perceptual innovation, and a therapeutic tool. The definition of autism as a disorder has evolved from its first diagnosis in the 1940s to our current frame of reference with several key revisions. These three categories--interaction, communication, and perseveration--underlie any published study of those on the autism spectrum. What has shifted in recent years is an approach to disability that positions autism as a social construction rather than a medical problem.
Winner of the TaPRA New Career Research in Theatre/Performance Prize 2016 This is the first scholarly book to focus exclusively on theatre and learning disability as theatre, rather than advocacy or therapy. Hargrave provocatively realigns the - hitherto unvoiced - assumptions that underpin such practice and proposes that learning disabled artists have earned the right to full critical review.
This succinct and engaging text examines the complex relationship between theatre and disability, bringing together a wide variety of performance examples in order to explore theatrical disability through the conceptual frameworks of disability as spectacle, narrative, and experience. Accessible and affordable, this is an ideal resource for theatre students and lovers everywhere.
Cultures of Representation is the first book to explore the cinematic portrayal of disability in films from across the globe. Contributors explore classic and recent works from Belgium, France, Germany, India, Italy, Iran, Japan, Korea, Mexico, Netherlands, Russia, Senegal, and Spain, along with a pair of globally resonant Anglophone films. Anchored by David T. Mitchell and Sharon L. Snyder's coauthored essay on global disability-film festivals, the volume's content spans from 1950 to today, addressing socially disabling forces rendered visible in the representation of physical, developmental, cognitive, and psychiatric disabilities. Essays emphasize well-known global figures, directors, and industries - from Temple Grandin to Pedro Almodóvar, from Akira Kurosawa to Bollywood - while also shining a light on films from less frequently studied cultural locations such as those portrayed in the Iranian and Korean New Waves. Whether covering postwar Italy, postcolonial Senegal, or twenty-first century Russia, the essays in this volume will appeal to scholars, undergraduates, and general readers alike.
Literary and filmic depictions of the disabled reinforce an "ableist" ideology that classifies bodies as normal or abnormal--positive or negative. Disabled characters are often represented as aberrant or evil and are isolated or incarcerated. This book examines language in film, fiction and other media that perpetuates the representation of the disabled as abnormal or problematic. The author looks at depictions of disability--both disparaging and amusing--and discusses disability theory as a framework for reconsidering "normal" and "abnormal" bodies.
In The Problem Body, editors Sally Chivers and Nicole Markotic bring together the work of eleven of the best disability scholars from the U.S., the U.K., Canada, and South Korea to explore a new approach to the study of film by concentrating on cinematic representations of what they term "the problem body." The book is a much-needed exploration of the projection of disability on film combined with a much-needed rethinking of hierarchies of difference. The editors turned to the existing corpus of disability theory with its impressive insights about the social and cultural mediation of disabled bodies. They then sought, from scholars at every stage of their careers, new ideas about how disabled bodies coexist with a range of other bodies (gendered, queered, racialized, classed, etc.). To call into question why certain bodies invite the label "problem" more frequently than other bodies, the contributors draw on scholarship from feminist, race, queer, cultural studies, disability, and film studies arenas. In Chivers and Markotic's introduction, they draw on disability theory and a range of cinematic examples to explain the term "problem body" in relation to its projection. In explorations of film noir, illness narratives, classical Hollywood film, and French film, the essays reveal the "problem body" as a multiplication of lived circumstances constructed both physically and socially.
As there has yet to be any substantial scrutiny of the complex confluences a more sustained dialogue between disability studies and comics studies might suggest, Disability in Comic Books and Graphic Narratives aims through its broad range of approaches and focus points to explore this exciting subject in productive and provocative ways.
Bodies of Modernism brings a new and exciting analytical lens to modernist literature, that of critical disability studies. The book offers new readings of canonical and noncanonical writers from both sides of the Atlantic including Flannery O'Connor, Eudora Welty, H. G. Wells, D. H. Lawrence, Elizabeth Bowen, Henry Green, Olive Moore, Carson McCullers, Tennessee Williams, J. M. Synge, Florence Barclay, Virginia Woolf, and James Joyce. Through readings of this wide range of texts and with chapters focusing on mobility impairments, deafness, blindness, and deformity, the study reveals both modernism's skepticism about and dependence on fantasies of whole, "normal" bodies.
This breakthrough volume of critical essays on Jane Eyre from a disability perspective provides fresh insight into Charlotte Brontë's classic novel from a vantage point that is of growing academic and cultural importance. Contributors include many of the preeminent disability scholars publishing today, including a foreword by Lennard J. Davis. Though an indisputable classic and a landmark text for critical voices from feminism to Marxism to postcolonialism, until now, Jane Eyre has never yet been fully explored from a disability perspective. Customarily, impairment in the novel has been read unproblematically as loss, an undesired deviance from a condition of regularity vital to stable closure of the marriage plot. In fact, the most visible aspects of disability in the novel have traditionally been understood in rather rudimentary symbolic terms--the blindness of Rochester and the "madness" of Bertha apparently standing in for other aspects of identity. The Madwoman and the Blindman: Jane Eyre, Discourse, Disability, resists this traditional reading of disability in the novel. Informed by a variety of perspectives--cultural studies, linguistics, and gender and film studies--the essays in this collection suggest surprising new interpretations, parsing the trope of the Blindman, investigating the embodiment of mental illness, and proposing an autistic identity for Jane Eyre. As the first volume of criticism dedicated to analyzing and theorizing the role of disability in a single literary text, The Madwoman and the Blindman is a model for how disability studies can open new conversation and critical thought within the literary canon.
In this groundbreaking and far-reaching collection, writers such as Andre Dubus, Stanley Elkin, and Adrienne Rich, confront what it means to be disabled in our society. Through the vehicles of nonfiction, poetry, fiction, and drama, Staring Back is the first anthology to open the landscape of the disabled experience for exploration and discussion.
Chosen by the American Library Association as a 2012 Notable Book in Poetry. Beauty is a Verb is a ground-breaking anthology of disability poetry, essays on disability, and writings on the poetics of both. Crip Poetry. Disability Poetry. Poems with Disabilities. This is where poetry and disability intersect, overlap, collide and make peace. "[BEAUTY IS A VERB] is going to be one of the defining collections of the 21st century...the discourse between ability, identity & poetry will never be the same." --Ron Silliman, author ofIn The American Tree "This powerful anthology succeeds at intimately showing...disability through the lenses of poetry. What emerges from the book as a whole is a stunningly diverse array of conceptions of self and other."< --Publishers Weekly, starred review From "Beauty and Variations" by Kenny Fries: How else can I quench this thirst? My lips travel down your spine, drink the smoothness of your skin. I am searching for the core: What is beautiful? Who decides? Can the laws of nature be defied? Your body tells me: come close. But beauty distances even as it draws me near. What does my body want from yours? My twisted legs around your neck. You bend me back. Even though you can't give the bones at birth I wasn't given, I let you deep inside. You give me--what? Peeling back my skin, you expose my missing bones. And my heart, long before you came, just as broken. I don't know who to blame. So each night, naked on the bed, my body doesn't want repair, but longs for innocence. If innocent, despite the flaws I wear, I am beautiful. Sheila Blackis a poet and children's book writer. In 2012, Poet Laureate Philip Levine chose her as a recipient of the Witter Bynner Fellowship. Disability activistJennifer Bartlettis a poet and critic with roots in the Language school. Michael Northenis a poet and the editor ofWordgathering: A Journal of Poetics and Disability.
FROM THE PUBLISHER: Every time Allie Brosh posts something new on her hugely popular blog Hyperbole and a Half the internet rejoices. Touching, absurd, and darkly comic, Allie Brosh's highly anticipated book Hyperbole and a Half showcases her unique voice, leaping wit, and her ability to capture complex emotions with deceptively simple illustrations. This full-color, beautifully illustrated edition features more than fifty percent new content, with ten never-before-seen essays and one wholly revised and expanded piece as well as classics from the website like, "The God of Cake," "Dogs Don't Understand Basic Concepts Like Moving," and her astonishing, "Adventures in Depression," and "Depression Part Two," which have been hailed as some of the most insightful meditations on the disease ever written. Brosh's debut marks the launch of a major new American humorist who will surely make even the biggest scrooge or snob laugh. We dare you not to. FROM THE AUTHOR: This is a book I wrote. Because I wrote it, I had to figure out what to put on the back cover to explain what it is. I tried to write a long, third-person summary that would imply how great the book is and also sound vaguely authoritative-like maybe someone who isn't me wrote it-but I soon discovered that I'm not sneaky enough to pull it off convincingly. So I decided to just make a list of things that are in the book: Pictures Words Stories about things that happened to me Stories about things that happened to other people because of me Eight billion dollars* Stories about dogs The secret to eternal happiness* *These are lies. Perhaps I have underestimated my sneakiness!
Cartoonist Ellen Forney explores the relationship between "crazy" and "creative" in this graphic memoir of her bipolar disorder, woven with stories of famous bipolar artists and writers. Shortly before her thirtieth birthday, Forney was diagnosed with bipolar disorder. Flagrantly manic and terrified that medications would cause her to lose creativity, she began a years-long struggle to find mental stability while retaining her passions and creativity. Searching to make sense of the popular concept of the crazy artist, she finds inspiration from the lives and work of other artists and writers who suffered from mood disorders, including Vincent van Gogh, Georgia O'Keeffe, William Styron, and Sylvia Plath. She also researches the clinical aspects of bipolar disorder, including the strengths and limitations of various treatments and medications, and what studies tell us about the conundrum of attempting to "cure" an otherwise brilliant mind. Darkly funny and intensely personal, Forney's memoir provides a visceral glimpse into the effects of a mood disorder on an artist's work, as she shares her own story through bold black-and-white images and evocative prose.
David Small, a best-selling and highly regarded children's book illustrator, comes forward with this unflinching graphic memoir. Remarkable and intensely dramatic, Stitches tells the story of a fourteen-year-old boy who awakes one day from a supposedly harmless operation to discover that he has been transformed into a virtual mute--a vocal cord removed, his throat slashed and stitched together like a bloody boot. From horror to hope, Small proceeds to graphically portray an almost unbelievable descent into adolescent hell and the difficult road to physical, emotional, and artistic recovery.A National Book Award finalist; winner of the ALA's Alex Award; a #1 New York Times graphic bestseller; Publishers Weekly and Washington Post Top Ten Books of the Year, Los Angeles Times Favorite Book, ALA Great Graphic Novels, Booklist Editors Choice Award, Huffington Post Great Books of 2009, Kirkus Reviews Best of 2009, Village Voice Best Graphic Novel, finalist for two 2010 Will Eisner Comic Industry Awards (Best Writer/Artist: Nonfiction; Best Reality-Based Work).
In this powerful memoir the the LA Times calls "moving, rigorous, and heartbreaking," Sarah Leavitt reveals how Alzheimer's disease transformed her mother, Midge, and her family forever. In spare blackand- white drawings and clear, candid prose, Sarah shares her family's journey through a harrowing range of emotions--shock, denial, hope, anger, frustration--all the while learning to cope, and managing to find moments of happiness. Midge, a Harvard educated intellectual, struggles to comprehend the simplest words; Sarah's father, Rob, slowly adapts to his new role as full-time caretaker, but still finds time for wordplay and poetry with his wife; Sarah and her sister Hannah argue, laugh, and grieve together as they join forces to help Midge. Tangles confronts the complexity of Alzheimer's disease, and ultimately releases a knot of memories and dreams to reveal a bond between a mother and a daughter that will never come apart.
Part memoir, part medical cautionary tale, Dumb tells the story of how an urban twentysomething copes with the everyday challenges that come with voicelessness. Webber adroitly uses the comics medium to convey the practical hurdles she faced as well as the fear and dread that accompanied her increasingly lonely journey to regain her life. Her raw cartooning style, occasionally devolving into chaotic scribbles, splotches of ink, and overlapping montages, perfectly captures her frustration and anxiety. But her ordeal ultimately becomes a hopeful story. Throughout, she learns to lean on the support of her close friends, finds self-expression in creating comics, and comes to understand and appreciate how deeply her voice and identity are intertwined.
I'm in the middle of a full-blown spaz-attack, and I don't care. I don't care at all. At home I always try to act normal, and spaz-attacks definitely aren't normal. Here, people understand. They know a spaz-attack signals that I'm excited. They're excited too, so they squeal with me; some even spaz on purpose, if you can call that spazzing . . . An unforgettable coming-of-age novel about what it's like to live with a physical disability It's the summer of 1970. Seventeen-year-old Jean has cerebral palsy, but she's always believed she's just the same as everyone else. She's never really known another disabled person before she arrives at Camp Courage. As Jean joins a community unlike any she has ever imagined, she comes to question her old beliefs and look at the world in a new light. The camp session is only ten days long, but that may be all it takes to change a life forever. Henry Holt published Harriet McBryde Johnson's adult memoir,Too Late to Die Young, in April 2005. Ms. Johnson has been featured in The New York Times Magazine and has been an activist for disability rights for many years.
After spending the summer with her artist grandmother, Trisha knows she wants to be an artist, too. She's thrilled when her sketches get her into Miss Chew's special art class at the high school. A substitute teacher tells her she's wasting time on art when she should be studying - but fortunately, this is one battle that Miss Chew and Trisha are up for! This true story shows just how important a teacher can be in a child's life - and celebrates the power of art itself.
"As a boy, my father learned to speak with his hands. As a man, he learned how to turn lead-type letters into words and sentences. My father loved being a printer." The setting is New York in the 1940s. Each day the narrator, a young boy, watches as his father goes off to work in the noisy printing factory where presses the size of small houses produce the daily newspapers. But the boy's father only hears the machines' loud pounding and rumbling as vibrations through the soles of his shoes. He is deaf. Although his father communicates with a few other deaf printers through his hands, he feels largely cut off from and ignored by his hearing co-workers. Then when a silent deadly fire erupts in the noisy pressroom, it is up to the father to save his fellow workers. But how will he tell them of the danger when they cannot hear him? Author Myron Uhlberg draws on his own childhood experiences as the hearing son of deaf parents to create this dramatic, evocative story. The narrative reflects a respect for deaf culture and the unique gifts each individual possesses. Historical details are deftly rendered and brought to life in the full-color illustrations. In this unusual tale, a father and son show their love for each other, as well as their dedication to a craft that creates words and sentences. Henri Sørenson's extraordinary paintings dramatize the powerful text, which illuminates the many ways we connect with one another.
An illustrated book that creates an environment that is accepting of students with sensory modulation difficulties, including many on the autism spectrum. It includes definitions of sensory processing and sensory modulation disorder, suggested discussion questions, and lists of related books and websites.
Elle is afraid to ride the Ferris wheel at the local fair. She prefers to keep her wheels on the ground with her huge, slobbering dog, Buddy. On the way home she see some athletes using racing wheelchairs and becomes excited. After her mom surprises her with a racing wheelchair of her own, she and Buddy train together. Elle's confidence grows and when the fair returns Elle now has the courage to conquer her fear and go on the ride.
This book presents the proceedings of the 8th Cambridge Workshop on Universal Access and Assistive Technology (CWUAAT '16), incorporating the 11th Cambridge Workshop on Rehabilitation Robotics, held in Cambridge, England in March 2016. It presents novel and state-of-the-art research from an international group of leaders in the fields of universal access and assistive technology. It explores various issues including the reconciliation of usability, accessibility and inclusive design, the design of inclusive assistive and rehabilitation systems, measuring product demand and human capabilities, data mining and visualizing inclusion, legislation in inclusive design, and situational inclusive interfaces (automotive and aerospace). This book provides an invaluable resource to researchers, postgraduates, design practitioners, therapists and clinical practitioners, as well as design teachers.
Disability and New Mediaexamines how digital design is triggering disability when it could be a solution. Video and animation now play a prominent role in the World Wide Web and new types of protocols have been developed to accommodate this increasing complexity. However, as this has happened, the potential for individual users to control how the content is displayed has been diminished. Accessibility choices are often portrayed as merely technical decisions but they are highly political and betray a disturbing trend of ableist assumption that serve to exclude people with disability. It has been argued that the Internet will not be fully accessible until disability is considered a cultural identity in the same way that class, gender and sexuality are. Kent and Ellis build on this notion using more recent Web 2.0 phenomena, social networking sites, virtual worlds and file sharing. Many of the studies on disability and the web have focused on the early web, prior to the development of social networking applications such as Facebook, YouTube and Second Life. This book discusses an array of such applications that have grown within and alongside Web 2.0, and analyzes how they both prevent and embrace the inclusion of people with disability.
The emergence of a decentralized, fragmented, and low-cost Internet opened up possibilities for persons with disabilities to lead an independent and inclusive life, which had been denied to them in the physical world. However, despite advancement in technology persons with disabilities have been excluded. With the digital divide opening up before them, there is a danger that social injustice faced by persons with disabilities in the physical world may be replayed in virtual space. Since the Internet is largely dominated by corporations, this digital divide cannot be bridged without questioning their role. This book explores the interplay between human rights of persons with disabilities and corporate obligation towards the creation of an inclusive and accessible Internet.
In 1974, not long after developing the first universal optical character recognition technology, Raymond Kurzweil struck up a conversation with a blind man on a flight. Kurzweil explained that he was searching for a use for his new software. The blind man expressed interest: One of the frustrating obstacles that blind people grappled with, he said, was that no computer program could translate text into speech. Inspired by this chance meeting, Kurzweil decided that he must put his new innovation to work to "overcome this principal handicap of blindness." By 1976, he had built a working prototype, which he dubbed the Kurzweil Reading Machine. This type of innovation demonstrated the possibilities of computers to dramatically improve the lives of people living with disabilities. In Making Computers Accessible, Elizabeth R. Petrick tells the compelling story of how computer engineers and corporations gradually became aware of the need to make computers accessible for all people. Motivated by user feedback and prompted by legislation such as the Americans with Disabilities Act, which offered the promise of equal rights via technological accommodation, companies developed sophisticated computerized devices and software to bridge the accessibility gap. People with disabilities, Petrick argues, are paradigmatic computer users, demonstrating the personal computer's potential to augment human abilities and provide for new forms of social, professional, and political participation. Bridging the history of technology, science and technology studies, and disability studies, this book traces the psychological, cultural, and economic evolution of a consumer culture aimed at individuals with disabilities, who increasingly rely on personal computers to make their lives richer and more interconnected.
This book brings together formally disparate literatures and debates on disability and technology in a way that captures the complex interplay between the two. Drawing on disability studies, technology studies and clinical studies, the book argues that interdisciplinary insights together provide a more nuanced and less stylized picture of the benefits and barriers in disability and technology. Drawing on a breadth of empirical studies from across the globe, a picture emerges of the complex and multi-directional interplay of technology and disability. Technology is neither inherently enabling or disabling but fundamentally shaped by the social dynamics that shape their design, use and impact.
In this groundbreaking collection, twelve international scholars - with backgrounds in disability studies, English and world literature, classics, and history - discuss the representation of dis/ability, medical "cures," technology, and the body in science fiction.
Using a social barriers model of disability, this text addresses the role of new technology in reducing the environmental and attitude barriers disabled people have commonly to face in the field of employment.
Never before have the civil rights of people with disabilities aligned so well with developments in information and communication technology. The center of the technology revolution is the Internet's World Wide Web, which fosters unprecedented opportunities for engagement in democratic society. The Americans with Disabilities Act likewise is helping to ensure equal participation in society by people with disabilities. Globally, the Convention on the Rights of Persons with Disabilities further affirms that persons with disabilities are entitled to the full and equal enjoyment of fundamental personal freedoms. This book is about the lived struggle for disability rights, with a focus on Web equality for people with cognitive disabilities, such as intellectual disabilities, autism, and print-related disabilities. The principles derived from the right to the Web - freedom of speech and individual dignity -are bound to lead toward full and meaningful involvement in society for persons with cognitive and other disabilities.
Pro HTML5 Accessibility helps designers come to grips with building exciting, accessible and usable web sites and applications with HTML5. The book covers how to use HTML5 in order to serve the needs of people with disabilities and older persons using assistive technology (AT). It aims to be a useful 'go-to' guide, providing practical advice. It takes several approaches, including a look at the new semantics of HTML5 and how to combine its use with authoring practices you know from using earlier versions of HTML. It also demonstrates how HTML5 content is currently supported (or not) by assistive technologies such as screen readers, and what this means practically for accessibility in your web projects. The HTML5 specification is huge, with new APIs and patterns that can be difficult to understand. Accessibility can also seem complex and nuanced if you have no experience interacting with people with disabilities. This book walks you though the process of designing exciting user interfaces that can potentially be used by everyone, regardless of ability. Accessibility is really a quality design issue, and getting it right is often more a matter of approach than having sophisticated, cutting-edge tools at your disposal. This book will be your companion in your journey to understand both HTML5 and accessibility, as the author has many years of experience as a designer and web developer working directly with people with all types of disabilities. He has been involved with the development of HTML5 from an accessibility perspective for many years, as a member of the W3C WAI Protocols and Formats working group (which is responsible for ensuring W3C specifications are serving the needs of people with disabilities) as well as the HTML5 Working Group itself. Introduces the new HTML5 specification from an accessibility perspective Shows how incorporating accessibility into your interfaces using HTML5 can have benefits for all users Explains how HTML5 is currently supported by assistive technologies like screen readers, and how to work around these limitations when developing
A growing number of individuals with special needs are discovering the benefits of therapies and activities involving horseback riding. Special Needs, Special Horses, by Naomi Scott, offers information about the amazing results possible with therapeutic riding, or hippotherapy. From recreational riding for individuals with disabilities, to the competitions some riders enter (and win), Scott describes the various techniques of the process and its benefits to the physically and mentally challenged. The book explores the roles of the instructors, physical therapists, volunteers, and the horses, and explains carriage driving, vaulting, and educational interactions with horses. Scott profiles individuals involved in the therapy, including clients whose special needs arose from intrauterine stroke, cerebral palsy, transverse myelitis, Parkinson's disease, paralysis, sensory integration dysfunction, multiple sclerosis, shaken baby syndrome, sensory damage, stroke, seizures, infantile spasms, Down syndrome, and autism. Special Needs, Special Horses is an excellent guide for the families of the many who do--or could--enjoy improved lives from therapeutic riding. It will also appeal to practitioners of therapeutic riding as an overview of their profession.
An exploration of the ways in which psychologists and other helping professionals can collaborate with users of assistive technology to help them get the most out of these devices. Thanks in large part to the 20th century's advances in technology, people with disabilities can live independent lives, contribute to their communities, attend regular schools, and work in professional careers as a result of assistive technology. This technological evolution has formented a shift from a medical model to a social model of technology delivery, an approach that puts as much emphasis on the user's community integration as it does on his or her physical capabilities. This change means that those in the field can no longer focus on the delivery of technology as an end in itself, but must go one step further and partner with consumers and communities to ensure that assistive devices are put to their best possible use. The volume provides research-based guidance on finding the perfect match between device and consumer, including key information on personality assessment, the influence of pain, coping skills, and the power of new technology and social programmes. It should be useful to psychologists, researchers and anyone working with or using assistive technology.
The first book of its kind, this text outlines and defines the process for selecting, integrating, and utilizing assistive technology in the work environment. Each stage of the process is examined in depth, and effective strategies are presented to help overcome the barriers likely to be encountered at each stage. The book also provides insight into the client's experience by drawing on research that explores the experiences of people using assistive technology in the workplace and the issues they face in acquiring and using their technology in the work environment. Results from the Assistive Technology User Study are explained - an extensive and unique research project undertaken by the authors that examines the experiences of AT users in the workplace, the barriers they experience, and the support strategies they use to function in the work environment. AT user quotes and anecdotes bring immediacy to obstacles faced in the workplace. Vignettes and case studies throughout the text encourage students to apply principles to real-life situations. Appendices include listings for various professional organizations, funding, listservs, and research resources, as well as lists of questions therapists and clients should ask in various situations. Material progresses in a logical manner, examining each facet of workplace AT beyond its theory and evaluation. Consumer/client-centered focus takes the client's needs into account, featuring anecdotes from the users interviewed in the AT User Study. Employer concerns are addressed, using anecdotes to illustrate issues from the employer's perspective - an essential factor to consider when selecting appropriate technology.